"Someone you know may have LUPUS"
alias Systemic Lupus Erythematosus (SLE)
Hello and welcome to the North East Lupus Group site! Here you can find information on:
- Lupus (alias Systemic Lupus Erythematosus) is an autoimmune disease where the patient's immune system creates antibodies which attack the body instead of protecting it.
- Although few people have heard of it, it is actually more common than leukaemia.
- Diagnosis is difficult, the cause is unknown, and the symptoms vary widely from one patient to another and from day to day for the same patient
- While some people are severely afflicted by Lupus, many others (especially if careful of themselves) can live virtually normal lives.
The charity Lupus UK, and its various publications and fact sheets.
- Lupus UK is a national charity founded by Lupus sufferers (and their nearest-and-dearest) to assist those who have Lupus and those who support them.
The North East Lupus Group's activities
Does any of this sound like someone you know?
- "Having lupus is like having your mind in fifth gear and your body stuck in first"
- "It's the tiredness. Even if you could sleep all day and all night it wouldn't help."
- "Finding people who understand what you're talking about and going through makes all the difference in the world"
- "Because you look well, nobody understands the way you're feeling"
- "I was told all my symptoms were in my head. I began to think I was a hypochondriac"
- "It takes 2 to 3 years to get to grips with lupus, but your grasp is strengthened by contact with other people who have it"
- "I badly need a local group, giving me the opportunity to talk and meet with other people with lupus"
Systemic Lupus Erythematosus - hard to say, harder to live with.